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I got diagnosed with hemochromatosis and I’m not supposed to use cast-iron or carbon steel cookware anymore.

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    I got diagnosed with hemochromatosis and I’m not supposed to use cast-iron or carbon steel cookware anymore.

    I wrote this as a comment under my post about winning Smithey Carbon, steel cookware, but I thought I’d make it into a separate post in case anyone searches for information on the subject.

    I had won a four piece set of Smithey carbon steel cookware…

    Update: I set these pieces on a shelf until we get our kitchen installed. They would work great on the camp stove that we’ve been cooking on for the last 18 months, but we don’t have much room for pots and pans while they’re not being used.

    in the meantime, I got an answer to a lifelong problem, And it turns out I have a genetic mutation where my body does not get rid of iron. It’s hemochromatosis, specifically the kind where I got it from both parents.

    It is recommended that people with this condition do not cook on cast-iron or carbon steel. Our plan had been to transition to cast-iron and carbon steel for everything once our kitchen is done, and winning this Smithey cookware was just a perfect part of this transition.

    After much research, I came to believe that the proclaimed level of danger of using cast-iron or carbon steel was not supported by science. 99% of the warnings are based on studies that do not adequately answer the extremely pertinent questions that I need to have answered before I can assess the danger level.

    I was really aggravated to find out how authoritatively everyone speaks, but then they don’t have the scientific information to base their authority statements on.

    Anyway, I came up with a plan that I think will work for us.

    1. 10” ceramic by Made In for eggs only.

    2. 10” All Clad stainless steel for our “daily driver”.

    3. Then for larger pans, or when we need more than one pan, I will break out the cast-iron or carbon steel.

    4. For pots and sauce pans, for normal usage, we will use our existing 5 ply stainless steel and enamel Lodge Dutch oven. When I cook outdoors for guests, or when we go camping, I will use the regular cast-iron Dutch oven ovens.

    I believe this plan is the right choice, considering the information that I was able to put together. It reduces our usage of cast-iron and carbon steel, but because I believe the danger level has been grossly overstated, I am not completely eliminating it.

    I was really, really looking forward to the transition to cast-iron and carbon steel. Both for cooking reasons, as well as the aesthetics. They give me a tremendous amount of joy. Our kitchen in our “new” house that we are building (and currently living in) will be white washed T&G pine, with Hickory cabinets. The idea of cast-iron and carbon steel pans hanging in the kitchen, and then using them daily, makes me very happy. So everything considered, It’s all very disappointing to me.

    But hey, for 35 years I’ve known that I have an iron problem. So I’m grateful to finally have answers. I just hope I didn’t permanently damage my liver, by delaying treatment until now. I think I’ll be OK, but I’m not confident. I am currently in the treatment phase, and then I will switch to the maintenance phase. Since it’s genetic, there is no cure.

    i’m really grateful that my treatment literally helps other people live. The primary treatment for this condition is phlebotomy. I am donating blood every two weeks during the treatment phase, which could take up to 18 months. Then I will switch to the maintenance phase for the rest of my life, which is donating blood every 2 to 4 months. There could be further complications, but the risk of that is pretty small for my particular situation.

    All that to say, after this diagnosis I traded the Smithey oval roasting pan, the wok, and the farmhouse pan for a Smithey deep farmhouse pan + lid, and the new 10” All Clad. So I’m actually down to two Smithey pieces, plus the lid.

    Adapt and thrive!​
  • Answer selected by SheilaAnn at September 8, 2026, 03:43 PM.

    Ah man, that's a bit rough. Sorry to hear you're having to deal with something like that. The luck of winning a prize like that and not even being able to use it! Dang. Stay healthy, and keep on keeping on!

    Comment


      #2
      Good luck!

      Comment


        #3
        My mom had that, but I don’t. She had to put all her cast iron up and go with stainless steel. I don’t know how mush iron enrichment you get from a well seasoned CI skillet but like you I wouldn’t risk it. You just made the prayer list. Hope you’re much better soon.

        Comment


          #4
          Yeah I've always wondered about that cast iron warning - most of those things are presumptive more than actually MEASURED.

          Make sure you donate blood regularly, too!

          Comment


          • Jerod Broussard
            Jerod Broussard commented
            Editing a comment
            Exactly. If a magnet doesn't stick to you can you really say you're holding on to too much iron.

          #5
          Well that sucks. I hpoe everything works out for you, but I suggest you monitor you skin to see if any rust develops.

          Comment


            #6
            Ah man, that's a bit rough. Sorry to hear you're having to deal with something like that. The luck of winning a prize like that and not even being able to use it! Dang. Stay healthy, and keep on keeping on!

            Comment


              #7
              Research it and see if there is any science to prove that the iron from a properly seasoned pan leaches into the food but perhaps it is best not to risk it.

              A couple of years ago my ferritin was really high. I told the doctor that I use mostly cast iron for cooking but the doctor told me that he did not think that using properly seasoned cast iron would cause an issue (his personal opinion). I would assume the same if the carbon steel is seasoned but I would avoid cooking acidic foods in both. I have not had my ferritin rechecked since that visit.

              Comment


              • BBQandLove
                BBQandLove commented
                Editing a comment
                I did research it. And all of the strong statements about how you can’t use carbon steel and cast-iron cookware are based on studies that do not support the proclaimed level of danger, plus they do not account for good seasoning. Really aggravated me that all these “experts” would make such strong statements without the supporting science. That’s why I have chosen the path of minimizing, but not eliminating my usage of cast-iron and carbon steel.

              • 58limited
                58limited commented
                Editing a comment
                BBQandLove I was in a bit of a hurry when I replied at lunch and I had not read your entire post. Looks like you have a good plan in place and I agree with texastweeter 's post below about most of the iron coming from the ingredients.

              #8
              Sorry to hear, glad you got your answers.

              Comment


                #9
                Wishing you great success with your new lifestyle changes and therapy sessions. Hang in there... You got this!

                Comment


                  #10
                  I bet you a dollar you get WAY more iron from the ingredients than from the vessel its cooked in. If any adjustment had to be made it should start there, with things that make the largest impact the easiest.

                  Comment


                  • BBQandLove
                    BBQandLove commented
                    Editing a comment
                    Yep. Like eliminating enriched flour for starters.

                  • texastweeter
                    texastweeter commented
                    Editing a comment
                    And another reason to not have beans in chili, lol. Good luck to you brother.

                  #11
                  Wow! We are all unique, but that’s one way you don’t want to be unique. I hope your safe pathway way works well for you.

                  Comment


                    #12
                    It's good you have answers to a life long issue. Switching cook ware is an easy way to Adapt and thrive!

                    Comment


                      #13
                      Good luck to you.

                      Comment


                        #14
                        Hoping for the best for you. I agree that modern medicine can be kind of shaky at times.

                        Comment


                          #15
                          Congratulations. You are a true Iron Man. Welcome to the club. Have you set off any metal detectors at the airport recently?? Just kidding.

                          I have been dealing with it for over 30 years. Fortunately, my older brother was diagnosed with it before me. It is hereditary and when my blood tests came back high in Ferritin when I was 35, I started with phlebotomies. But I have never been diagnosed with Hemochromatosis. 30 years ago when you changed medical providers, they would not cover pre-existing conditions. So I made sure a diagnosis was not entered into my medical records.

                          Yes, phlebotomies for the rest of your life. I hope you are not scared of needles. I have to deal with scar tissue, so it takes a bit more to punch through the skin.

                          If you donate your blood to the Red Cross or a hospital, DO NOT TELL THEM YOU HAVE A BLOOD DISEASE OR BLOOD DISORDER. If you do, will be marked and recorded as undesirable and will be unable to donate blood. Which is a shame, because you have iron rich blood. As I mentioned, I have never been diagnosed with Hemochromatosis, so I am not lying to the Red Cross.

                          If you have any questions, let me know. Be happy to share my experiences and limited knowledge.

                          Oh, and don't stop using CI. Your blood letting will lower the iron concentration in your blood.

                          Comment


                          • BBQandLove
                            BBQandLove commented
                            Editing a comment
                            Unfortunately, I got my diagnosis before I even had a clue what it might be. So I’m stuck “in the system”. Thankfully, the blood center in Springfield Missouri will take my blood, and actually use it. But it’s a special program, and I walked through the room where everyone else is donating to a small room with a single donating chair. They have to do a lot more paperwork. I have to drive over 90 minutes to get there, so it’s kind of a hassle, but I’m not complaining.

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